Why Sarepta? Why Now?
Sarepta is on an urgent mission: engineer precision genetic medicine for rare diseases that devastate lives and cut futures short. We hold a leadership position in Duchenne Muscular Dystrophy and are building a robust portfolio of programs across muscle, central nervous system, and cardiac diseases. Our next-generation siRNA platform is focused on chronically administered therapies for neurodegenerative and pulmonary diseases.
We’re looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.
What Sarepta Offers
At Sarepta, we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work, and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work-life resources designed to support people in the following areas:
Physical and Emotional Wellness
Financial Wellness
Support for Caregivers
For a full list of our comprehensive benefits, see our website: https://www.sarepta.com/join-us
The Importance of the Role
The Director, Patient Affairs, Community Scientific Engagement professional supports the development of patient-centered communications and engagement initiatives that help make scientific and clinical information more accessible, understandable, and relevant for patients, caregivers, and advocacy communities.
Reporting to the Executive Director of Scientific Engagement and Strategy, this role partners closely with Patient Affairs, Medical Affairs, and other cross-functional teams to help translate approved scientific information into clear, meaningful communications that reflect patient needs, perspectives, and priorities. The position also supports the collection, synthesis, and communication of patient and stakeholder insights to help inform Patient Affairs strategies, programs, and engagement activities.
The ideal candidate combines scientific acumen, strong communication skills, and a deep commitment to understanding and elevating the patient perspective.
The Opportunity to Make a Difference
Patient Communication & Engagement
Translate approved scientific and clinical information into clear, accessible, and patient-friendly language across a variety of formats, including educational resources, patient-facing materials, digital content, and engagement tools.
Support the development of communications that help patients and caregivers better understand disease, treatment, and research-related information.
Collaborate with patient stakeholders, advocacy organizations, and internal partners to help ensure communications are relevant, culturally appropriate, and responsive to patient needs and experiences.
Contribute to the development of patient-centered communication strategies that support engagement, education, and advocacy objectives.
Scientific Content Translation
Lead the development and execution of community-friendly plain language scientific summaries, translating complex scientific and clinical data into accurate, accessible, and meaningful communications for patient and advocacy audiences, in alignment with the broader Patient Affairs Scientific Engagement & Strategy
Review scientific publications, congress presentations, and emerging clinical data to identify information that may be meaningful to patient stakeholders.
Develop patient-friendly summaries, educational resources, and communication materials based on approved scientific content.
Partner with Medical Affairs and other subject matter experts to help ensure patient-facing communications accurately reflect scientific information while remaining understandable to non-scientific audiences.
Support the adaptation of scientific content into formats that are meaningful and accessible for patient…