Department:
107300 Patient Advocacy
Location:
Massachusetts - Remote, USA- Remote
Be a part of a global team that is inspired to make a difference in the lives of people living with rare disease.
At Travere Therapeutics, we recognize that our exceptional employees are vital to our success. We are a dedicated team focused on meeting the unique needs of rare patients. Our work is rewarding – both professionally and personally – because we are making a difference. We are passionate about what we do.
We are seeking talented individuals who will thrive in our collaborative, diverse, fast-paced environment and share in our mission – to identify, develop and deliver life-changing therapies to people living with rare disease. We stick by our values centered on patients, courage, community, and collaboration to pursue our vision of becoming a leading biopharmaceutical company dedicated to the delivery of innovation and hope to patients in the global rare disease community.
At Travere Therapeutics, we are in rare for life. We continue to courageously forge new paths as we move toward a common goal of elevating science and service for rare patients .
Position Summary
The Specialist, Community Advocacy builds and sustains trusted relationships with patients, families, caregivers, patient advocacy organizations, and other community stakeholders while supporting the delivery of meaningful community programs. Initially focused on rare kidney disease, the role combines external engagement, field insight gathering, and program coordination to help inform Travere’s patient engagement strategy and educational priorities.
Reporting to the Director, Community Advocacy, the Specialist independently manages assigned relationships, outreach activities, and program responsibilities within approved plans and established guidelines. Through responsive engagement and reliable follow-through, this role strengthens Travere’s reputation as a trusted community partner and supports its growth as a multi-asset company and rare disease leader.
Primary Responsibilities
Community Relationships and Field Engagement
Cultivate and steward assigned relationships with patient advocacy organizations, community-based organizations, patients, families, caregivers, and other community stakeholders; serve as a day-to-day contact and follow through on agreed actions.
Identify opportunities to broaden engagement with local organizations and expand reach to less-connected populations.
Represent Travere at patient meetings, educational programs, conferences, and community events; engage stakeholders with empathy, cultural humility, and respect for their priorities and independence.
Interact professionally with healthcare professionals and community leaders to understand local needs and support approved community education and engagement activities.
Use independent judgment to prioritize routine outreach, respond to partner needs, and recommend next steps; escalate sensitive matters, new commitments, or issues requiring strategic, medical, or compliance guidance.
Community Insights and External Landscape
Gather insights through field interactions and approved listening activities, including patient and caregiver experiences, educational gaps, barriers to engagement, and unmet community needs.
Document and synthesize observations into concise summaries, and recommend opportunities to inform patient engagement strategy, educational priorities, and future programs.
Share insights with Community Advocacy leadership and relevant Patient Advocacy colleagues; support appropriate follow-up so community perspectives inform planning and program improvements.
Maintain working knowledge of the rare kidney disease advocacy landscape, emerging scientific advancements, and evolving patient education needs through approved resources and internal learning.
Community Programs and RKD and Me
Coordinate assigned local and virtual programs, listening sessions, educational events, and grassroots…